文字加油站:So living in the moment I tell myself.
口袋裡有一大串的奧斯卡得獎的電影要看,但因為實在太愛《時時刻刻》里的那個Julianne Moore,所以我第一部看的是《Still Alice》。
整套電影,最感人的是Alice的演講,聽得我好感動呢!
Good morning, it’s an honor to be here.
The poet Elizabeth Bishop once wrote:
The art of losing isn’t hard to master. So many things seem filled with the intent to be lost that their lost is no disaster.
I am not a poet. I am a person living with early onset Alzheimer’s, and as that person I find myself learning the art of losing every day. Losing my bearings, losing objects, losing sleep, but mostly losing memories.
(Then her speech papers fell on the ground)
Em, I think I will try to forget that just happened.
(She joked after picking up the papers)
All my life, I’ve accumulated memories; they’ve become in a way my most precious possessions. The night I met my husband, the first time I held my textbook in my hands, having children, making friends, traveling the world. Everything I accumulated in life, everything I worked so hard for, now all that is being ripped away. As you can imagine, or as you know, this is hell, but it gets worse.
Who can take us seriously when we are so far from who we once were? Our strange behavior and fumbled sentences change other’s perceptions of us and our perceptions of ourselves. We become ridiculous, incapable, comic, but this is not who we are, this is our disease. And like any disease, it has a cause, it has a progression, and it could have a cure.
My greatest wish is that my children, our children, the next generation do not have to face what I am facing. But for the time being, I’m still alive, I know I’m alive. I have people I love dearly, I have things I want to do with my life. I rail against myself for not being able to remember things. But I still have moments in the day of pure happiness and joy. And please do not think that I am suffering, I am not suffering. I am struggling, struggling to be a part of things, to stay connected to who I once was.
So living in the moment I tell myself.
It’s really all I can do. Live in the moment, and not beat myself up too much, and, and not beat myself up too much for mastering the art of losing.
One thing I will try to hold on to though is the memory of speaking here today. It will go, I know it will, it may be gone by tomorrow. But it means so much to be talking here today like my old ambitious self who was so fascinated by communication.
Thank you for this opportunity. It means the world to me.
Thank you!
我沒辦法想像,如果正值壯年,事業也發展順遂的當下,(50歲不算老)發現自己患上阿爾茲海默癥,會是怎樣的心情呢?正如Alice在電影中說的,她情願自己患上的是癌癥,起碼還可以放手一搏。而阿爾茲海默癥,會慢慢地抽走你的記憶,帶走你的自理能力……只能慢慢地,慢慢地接受自己一天一天病發。這套電影無疑是悲傷的,Juliana的演技也是其中的重點。
看完電影的當下,我想,如果記憶真的有保質期,那就讓我們living in the moment吧!
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